How can you support ALS Awareness Month

This May, help spread awareness about amyotrophic lateral sclerosis (ALS) by getting involved in advocacy efforts. Advocacy is a powerful tool that can help bring about change. By raising awareness about ALS, you can help promote research and support people affected by the disease. 

To raise awareness and support for those who have ALS, ALS Awareness Month is observed every May. During this month, individuals and organizations work together to spread awareness about the disease and raise funds to support research for a cure.

By increasing awareness, we can improve access to resources and support for people with ALS and their families.

1. Educate yourself about ALS

ALS is characterized by the gradual degeneration of brain and spinal cord nerve cells. After a well-known baseball player passed away from it, it is frequently referred to as Lou Gehrig’s sickness. ALS interferes with nerve and muscle function.

ALS is not communicable and does not affect cognitive ability or the senses (such as sight or hearing). 

Although it can happen earlier, ALS most frequently strikes persons between the ages of 40 and 70, regardless of race or ethnicity. Symptoms of ALS vary from individual to individual but often include muscle weakness, seizures, and inconvenience of talking, gulping, and breathing. There’s currently no known remedy for ALS, but there are medicines that can help calm indications and improve quality of life.

These treatments may include medications, physical therapy, occupational therapy, speech therapy, and respiratory support. 

Over 5,000 Americans are given an ALS diagnosis each year, or roughly 15 new cases every day, according to the ALS Association.

2. Donate to ALS organizations

 If you would like to donate to an organization that helps those with ALS, there are many reputable ones to choose from.

Some of the most well-known organizations that support ALS research and patient care are the ALS Association, ProjectALS, and the ALS Therapy Development Institute. Numerous smaller organizations are dedicated to ALS, and many of them are listed on the ALS Association’s website. These organizations fund research to find a cure for ALS, provide services and resources to people with ALS and their families, and advocate for policies that support people with ALS.

The ALS Association is one of the largest organizations of its type in the United States. They fund research to find treatments and a cure for ALS, provide resources and services to people and their families, and advocate for policies that improve the lives of people with ALS. 

Project ALS is a nonprofit organization dedicated to finding a cure for ALS. They fund cutting-edge research and collaborate with scientists, doctors, and industry partners to develop new treatments for the disease. Project ALS also provides support services to people with ALS and their families. Donations to Project ALS help fund research and support services for people with ALS.

3. Spread awareness on social media

Using social media to spread awareness is a powerful way to support ALS Awareness Month. 

You can share your personal experiences with ALS, highlight the experiences of those affected by the disease, and provide information about the research being done to find a cure. Sharing links to donation pages for ALS organizations is also an effective way to encourage others to get involved. 

4. Participate in an ALS walk or fundraiser

Many ALS organizations host fundraising events, such as walks or runs, to raise awareness and funds for the cause. Participating in these events can be a fun way to get involved, meet others who share your passion for ending ALS, and contribute to a great cause.

If there are no events near you, consider starting your fundraiser to support ALS research. Be sure to share your connection to ALS and why this cause is important to you. 

5. Support people with ALS

During ALS Awareness Month, helping people with ALS is a vital way to show your support. As the disease develops, people with ALS and their families may require assistance with several duties, such as running errands, cooking meals, or just spending time together. 

Showing empathy and understanding is also crucial when supporting people with ALS. This disease can be incredibly isolating and challenging, and people with ALS may feel frustrated, sad, or overwhelmed at times. Simply being there to listen and offer emotional support can make a big difference in their lives.


In conclusion, ALS Awareness Month is an important time to raise awareness and support for people with ALS and their families. 

By acting and advocating for this cause, you can help improve the lives of people with ALS. We encourage everyone to get involved in any way they can and to continue supporting the ALS community beyond ALS Awareness Month. Together, we can make a difference and support those affected by ALS.

If you are unable to assist your parent or loved one with ALS, consider hiring a caregiver in north bay. Our Specialty Program has provided training to many of our caregivers. Contact us today!

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